Sunday, May 27, 2012

Sunday Shootout - Skink Style!

First, a little story from this morning.

I had heard The Skink's little voice over the baby monitor this morning and knew she was wide awake and playing when I crawled, groaning, from my bed. It would have been really nice to sleep in another hour or 4, but I guess I'll have to wait until The Skink is a teenager.

It is my belief that the teenage years are a 10 - 15 year span when humans morph into cats. Like cats, they sleep about 16 hours a day, lie around on the floor for another 3 hours and play wildly for an hour - but only when it suits them to do so. They revel in their independence and rub up against all the wrong things. See? They are cats.

Broadway is currently in his cat phase. The Skink, however, has another 5 - 6 years before she goes all feline on us.

So yeah... I dragged my sleepy tush out of bed this morning, dressed, put some coffee on and went up to release The Skink from the confines of her bedroom... but when I got up the stairs, her door was ajar. Well... her door was still a door but it was open a tad. (Do you ever argue with cars that insist "the door is ajar?" No, silly car! It's not a jar! It's still a door.) ...but I digress.

I could smell poop before walking into the room. That's never a good sign.

I pushed the door open the rest of the way and was greeted with the sight of a very poopy night-time diaper lying on the floor with a collection of used wipes all around it. The Skink was up on the changing table and Iraq was diligently using another 30 or so wipes to clean up the rest of the mess. There was poop on the changing table, on the floor, on the potty chair, on the pajamas and on the wall. So I did what any good mother should do...

I put a great, big smile on my face and said, "Oh Iraq! What a wonderful big sister you are! What would I ever do without you?" (Aside from not having to clean poop off the walls, floor, table... )

The two sisters grinned back at me, clearly pleased with their great success. I merrily told them to go downstairs and pick out what they wanted for breakfast, and I'd be down in just a few minutes because I needed to... um... put away some clothes! (Yeah! That's it. No - I'm not going to slave away cleaning up this huge mess of poo-licious disaster zone you two created. I haven't even noticed it, really!) LOL. They were both so stinkin' (and I do mean "stinkin'") proud of themselves, I couldn't possible take the wind out of their sails.

After I came downstairs and boiled my arms, the girls wanted me to take their picture together. How cute is that?


The morning went well, but by noon I was ready to sell Iraq to the gypsies. (Unfortunately no gypsies stopped by looking for a bargain on a kid.) *Sigh* The knowledge that it's a 3-day weekend has Iraq's transition issues in high gear. yay. I managed to survive without crying or the use of duct tape.

Yet, no matter how crazy it gets around here, The Skink always seems to find a way of bringing a smile to my face.

This evening she found the dress that Mimi bought for her and brought it to me, asking for my help to put it on. Once it was on, she insisted I "Take pictures!" I ran for my camera and was rewarded with some wonderful modeling!

Everybody was Kung-Fu fighting...






You gotta love any kid who will dress up and make faces just to make Mommy laugh! 

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Saturday, May 26, 2012

Quick, Wet Update

I'm exhausted after a fun day at the lake, and the "writing" part of my brain doesn't seem to be functioning well at this point. Thank goodness a picture is worth 1,000 words, right?

As soon as Iraq got into the water today, The Skink wanted to follow right along, so we put her life vest on her and threw her in let her climb into the water with her sister. They had a blast!






Shortly after this picture was taken, I had to run up to the house (I'd had a lot of coffee). When I came back down, my older daughter was missing. According to my mom (who was watching the children while I was in the house), one of her neighbors swung by on a jet-ski and stole her away to go play with his granddaughter of the same age. Pretty cool when a play date starts with being picked up by a jet-ski!


The Skink was happy enough in the inflatable pool for the rest of the afternoon... though she shed her bathing suit at some point. In order not to offend my audience (or provide an unwanted source of "interest" for yucky people), I have airbrushed out certain anatomical parts in some places, and added leaves and flowers in others. 


One of the neatest things about The Skink is that a pool of water and a small green bucket can keep her entertained for hours! She spent at least an hour dumping water over her own head, and later traded the green bucket for two blue cups. Hey - whatever works, right?

I'm the queen of the bucket!  (Airbrushed! That's right... I removed my child's "chest parts." The picture was just so cute that I had to share it - these are the times I wish she had been "better dressed" for the occasion.)




After a fun, naked and watery afternoon for The Skink, we dried off and put some clothes on her. 
Soon after, Iraq was returned to us like this:


Not too shabby, huh?

OK - I'm off to bed. Wishing you all a fun and safe Memorial Day weekend!

Thursday, May 10, 2012

Pedaling My Worm to Nystagmus Eye Surgery


Today was eye surgery day! But first, I want to share something funny that came home in The Skink's school backpack on Wednesday.

School work! Yes - the kind of school work all kindergarteners have at some point... but with true Skink Style! You see, The Skink has a BIG sense of humor. It comes out when she's bored of the task at hand and has an irresistible desire to spice things up. Check this out - it's like Ad-Libs for kindergarteners!



I don't know about you, but I try to plant plenty of caterpillars in my garden, but I always warn them to watch out for those seeds that crawl through the dirt!

On a more serious note, today was eye surgery day! In comparison to The Skink's last eye surgery where both eye balls were basically removed from her head so every last eye muscle could be readjusted, this one was just a simple tweak.

The Skink was born with a very severe case of Nystagmus. We don't know if it was a result of her prematurity and low birth weight (2 lbs 7 oz) or an issue related to Down syndrome. It could have been either (or both) but at any rate, her case was really bad!

 The Skink - age 2. She had to tilt her head back as far as she could to make her eyes stop wiggling.

The initial surgery was done when she was 2 years old, and we had to drive up to Pittsburgh, PA because our local doctor wouldn't touch such an extreme case. The Skink saw the doctor who developed the surgery for Nystagmus. Upon finishing her surgery (which was scheduled between a kiddo who had been flown in from India to receive the procedure from this doctor, and another from Egypt) Dr. H***** announced that The Skink's was one or the worst cases of Nystagmus he had ever seen.

I love it when doctors are so encouraging like that!

Anywhoo - that first surgery worked miracles! While it didn't fully correct the condition, it reduced the rapid movement ten-fold. Prior to the surgery, The Skink had to lean her head so her nose was facing the ceiling to quiet her eye movement enough to look straight ahead... and after the surgery she only needed to tilt it a bit to one side.

 You can see how The Skink's left eye is about 2 mm higher than the right eye. Either that, or there's something up in the sky that she's only half-paying attention to.

The purpose of today's surgery was to lower her left eye by about 2 mm.

Last night and this morning we put drops in The Skink's eyes to dilate them - which gave her a great excuse to look very stylish on the way to the surgery center! 

(It would have been inappropriate to bring my big, new camera to the surgery center, so many of the following pictures were taken with my old Kodak Easy Share camera - which I can swiftly hide in my bra at the first sign of an angry nurse!)

 Walking with Daddy into the Surgery Center. Note the spiffy new cow backpack which is perfect for carrying...    cows.

Then, of course, it was time to hurry up and wait. But that was fine with The Skink - she started her own little dance party right there in the waiting room! Smart Daddy brought along a Victorious DVD, so after the dance party ended, The Skink enjoyed watching a bit of her favorite show. 

I had been really worried because the surgery was scheduled for 11:15 a.m. and The Skink wasn't allowed to eat or drink after midnight the night before... but do you know? She never once complained or begged for food! Apparently dancing was far more fun than eating! 

When we finally were taken to a room, The Skink was given some sleepy-juice... which she resisted with all her might! She didn't want to miss out on all the excitement!

Checking out the 2 ID bracelets on her ankle.

Can't... go... to... sleeeeeeeeep...

And then somebody came and took her - she wasn't asleep, but went along happily - eager to have a new adventure!

The surgery took about an hour and a few minutes. The doctor came back and said that everything went well (considering the scar tissue he had to work around) and said that her glasses prescription has changed just a little. She's slightly less near-sighted! Hooray!!

Do I look a tad tired?  I can't imagine why...

Juuuust starting to wake up. Feeling a bit cranky - but who could blame her?






And once the bulk of the grogginess from the anesthesia wore off, she set her sights (her slightly less-nearsighted sights) on Goldfish crackers and apple juice! It was really rather amazing just how happy she was once she really woke up!




Once we got home, she wanted to pose and make model-pouty-faces for the camera! Silly stinker!



See this? This is my good eye!




Children are amazing! While it looks like it would hurt like heck, this kid bounced around for the rest of the day - just as happy as could be. She ate like a horse and went right back to her regularly scheduled Skinkiness. Now I just have to figure out how to break it to her that I'm not sending her to school tomorrow looking like she was hit by a bus. She'll be horribly disappointed!


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Friday, May 4, 2012

One of Those Amazing Days

Yesterday was one of those amazing days.

One of the best things about life is that you just never know when one of these fun, amazing days will just pop up! You can't necessarily plan them and you can't make them happen. They just happen on their own, which only adds to the sheer amazingness of it all.

Yesterday started out like any other day. Got the kids off to school, took care of a few odds and ends around the house, took The Skink to the doctor for her eye surgery pre-op check up. Isn't it funny how some of us special needs moms just throw stuff like "pre-op check up" around like it's a normal daily activity? While it is by no means a daily activity, it ain't our first rodeo, either. The Skink is getting some adjustments made to the position of her left eye next week. In comparison to the major eye surgery she had when she was two, this is small stuff.

But anyway, back to the Amazing Day thing...

My friend V has a small farm where she raises chickens, ducks and her two daughters. A while back she invited us over so my girls could see her chicks and ducklings and meet her girls, so when The Skink and Iraq got home yesterday, off we went.

Upon meeting, the girls all became instant friends. The four of them went off and played happily until it was time to go out and see the birds. The Skink was quite content to admire the chickens and ducks from a small distance, but Iraq was ready to get some good chicken cuddles!



The girls had a great time helping to collect fresh eggs from the hen house. Apparently The Skink didn't feel right about taking the eggs away from the chickens. She tried to put one egg back in, but it was too far to reach... so she just dropped it in. (Ooops) We took the surviving eggs back up to the house where snacks were waiting for us.

Then the girls were off again, this time barefoot and with slices of delicious, sweet watermelon in hand. There's just something about being in the country that seems to set a child's spirit free. Iraq has come a long way with her social issues and anxiety, but yesterday - out in that wonderful country setting - she was just another little girl. As V and I sat talking, we could hear the happy voices and giggles of the girls as they played together. Just four little girls having fun and enjoying being little girls.

All too soon, V's younger daughter had to get ready for her weekly riding lesson. The news was met with groans and disappointment. Yeah - they were having that much fun! So on a whim we decided we would all go to the barn to see the horses.


While L2 was having her lesson, the other three girls wasted no time getting as loud and giggly as they possibly could.


In fact when it came to having fun, they did such a great job that we were asked to take them a bit further away... where they wouldn't be such a distraction to the horses!

Lucky for us, a country girl's dream was waiting in the next meadow!


Yup! A real rope swing hanging over the most picturesque babbling brook in all of Virginia!


And just up the hill, there was a horse swing cut from an old tire and hanging from a shady Oak tree!
If this isn't heaven, then I sure hope heaven has a carbon copy of this place!








This may be one of my all-time best shots! I get a big, goofy grin from ear to ear when I look at it:



Every girl should experience the joy of running barefoot through the grass, swinging from a rope on a tree, splashing through a cool mountain brook and just... being a girl! I just wanted to bottle the day. (Lucky for me, camera's are a little like day-bottling devices!)









These are the kind of amazing days I wish would never end. As the sun started setting over the Blue Ridge mountains, the girls let the cool stream rinse the mud from between their toes. Shoes were gathered and put on damp feet and we headed back to the car.

This morning, after asking (again) when we can see L1 and L2, Iraq got ready for school, helped The Skink on to her bus and came back in the house to spend a few minutes with me. We cuddled up on the couch and talked about the fun she had with her new buddies. We talked about how great it is to have friends. Iraq has a good friend at school this year. It's really the first time she's been able to maintain a peer relationship like this. The kid is blossoming - I tell you!

Before leaving for the bus, Iraq went up to her room and came down with one of her treasured lip glosses. These are some of the top items she is known to hoard and steal due to her Asperger's syndrome.
"Are you taking that lip gloss to school today?" I asked.
"Yeah. I'm going to give this one to R, because she's my friend!"

It's pretty cool when an amazing day lasts all the way through to the next morning!

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Do you have some special memories from your own childhood? What are some experiences you think every kid should have? I'm looking forward to reading your responses!


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