Thursday, May 30, 2013

Our Government Is Broken – Why I Choose to Walk Down the Middle of a Very Dangerous Road



I’m the stay-at-home-mom of 3 kids – 2 of whom have special needs. I’m not a politician, a lobbyist, a church or a corporation. I am a citizen of the United States of America.

Lately it seems to me that our country is on a downward spiral, whipping around out of control as if being sucked into a black hole. The centrifugal force has resulted in a very frightening polarization of our government and our people.

My contacts on social media have turned my homepage into an unending barrage of propaganda highlighting every misstep made by government officials, corporations or religious/non-religious groups. Politics have become a team sport, citizens are taking sides and the competition is fierce.


We all look upon the same big picture (like the one above), but we see what we want to see… or what those people we trust want us to see. Then, as a country, we argue over whether that big picture depicts a young woman or an old woman. We take sides and pick teams and our teams become so focused on winning the argument game that the individuals on the teams either refuse to see the whole picture or lose the courage to step forward and say that the claims of both sides have validity.

Perhaps it is because as a country we developed on a capitalist foundation that we have become so competitive. Initially this competitive nature allowed us to build and grow, and become an independent nation. Now that our nation has grown and flourished, what is this internal competition doing to it?

Aren’t we supposed to be the United States of America? Doesn’t that very word insinuate we are all on the same team? "United we stand, divided we fall." The concept is not new. In fact, the above phrase is attributed to the ancient Greek, Aesop, so clearly it has been around for longer than our own great (or not-so-great) nation.

We have touted ourselves as the greatest nation on earth, have we not? Perhaps that was once true, but I for one don’t believe that we are all that great any more. In fact, the more I read about our current lawmakers, the less faith I have in our government. And I don’t think I am the only one.
I was raised by Republican parents. They raised me to believe that if I got a good education, worked hard and invested my resources properly, I would live long and prosper. (What can I say? My father was in the aerospace industry – so apparently I’m at least part Vulcan.) In effect, I was raised with a strong team affiliation.

Yet in my adult life I have learned the hard way that there is more to the picture than what I was raised to see. Both my husband and I were working full-time. We were paying mortgage on a house and were always up-to-date on our car payments and bills. Then our youngest was born 10 weeks prematurely with Down syndrome. Our health insurance only covered certain parts of the vast pile of medical bills. Our baby came home with a feeding tube and could not be put into a standard day care. We would have to spend our own money to pay for a nurse to care for her while I was at work… but unfortunately nurses made a higher hourly wage than I did. I had to stop working to take care of our child. We lost our house, our cars and the lifestyle we had built on a foundation of Republican dogma. 

Is it not ironic? Though my personal views are against abortion, I can still look from the middle of the road and see that the very same “team” that says that abortion is wrong is against giving handouts to those in need. After some really good plays, our contribution to the team went virtually unnoticed and my family was benched. Suddenly the rest of the picture became very, very clear. 


Although I went to a high school with Catholic affiliation, I was raised with science – my parents taught me to listen with my ears, see with my eyes and utilize my brain to make sense of the input. It was from a very early age I felt that the things I was seeing and the things I was being told to believe weren’t adding up to the picture before me.

I was taught in school that the United States of America was founded upon Christian values. I also learned that many of the first people to settle in North America did so for religious freedom. (This does not include the Native Americans who were living here long before the continent was “discovered” by some rather narcissistic Europeans – men that apparently believed that nothing aside from their own atrophied universe existed until they themselves noticed and validated it. Let us remember that these very same men believed the earth to be flat until not too terribly long before “discovering” North America… but I digress… badly…)


Religious freedom was so important to the people colonizing North America, in fact, that when the Constitution was penned by our founding fathers, the very first Amendment they included stated:

Congress shall make no law respecting an establishment of religion, or prohibiting the free exercise thereof; or abridging the freedom of speech, or of the press; or the right of the people peaceably to assemble, and to petition the government for a redress of grievances.”

And yet are religious issues not now cause for some of our biggest arguments? For example, only certain people are legally allowed to marry in our country because Christianity forbids otherwise. Yet not every legal citizen of the United States of America is a Christian, and many Christians disagree with disallowing same-sex unions. Wouldn’t that in and of itself be an infringement upon the free exercise of religion? 


Later along the way, science taught me the value of survival of the fittest. Only those who are the strongest thrive while the weak die out. There are those in our society that tout eugenics – the use of science to weed out humans/fetuses with inferior genes and preventing the reproduction or birth of those individuals. See this Link.

There are people that believe my youngest daughter does not have the same value as other human beings. In fact a whopping 92 percent of people choose to terminate pregnancies when they learn their fetus has Down syndrome… and yet I look with my eyes – I listen with my ears and I see how smart and witty my youngest is. While there are many in our country who choose not to work – who choose to collect unemployment and food stamps, I would bet everything that I (still) have that my daughter with Down syndrome will have a good job some day and earn her own way. 


So who is right? Should we prevent the abortions of fetuses that will be born to unemployed, drug abusing parents who will neither have the money to feed them properly or the wherewithal to teach these children the value of working for a living while we devalue the lives of individuals with special needs who will quite possibly someday be self-sufficient with proper education? Should we claim that all life has value, yet refuse to help those born to more difficult circumstances or should we abort them all in hopes of creating a more perfect society filled with “perfect” individuals?

And with these words, a gauntlet has been thrown and yet another game of semantics begins. People will take sides and argue their personal, political and religious views. Who will win? Or will we as a country allow our variety or views and ideologies to tear our great country apart? 


“It’s a vase!”
“No! It’s two faces!”

So what do we do about our country’s gross polarization? Of our individual refusal to see the whole picture? Of our national insistence of taking sides and competing against ourselves?

Perhaps it’s time to find the “I” in “Team.” Or perhaps it’s time to quit the team altogether. Perhaps it’s time to combine the team into one great country.
After all… whose side are YOU on?

Sunday, April 14, 2013

Spring Breakage and Prayer Request

Once upon a time it was Spring in Southern Virginia.


 And then it wasn't.


But Spring Break came anyway, so the family prepared to go on a trip to Busch Gardens, Williamsburg.

On Easter Sunday I was worried about The Skink's cough, but luckily her doctor's office had a doctor in that morning. As we were planning on leaving for Busch Gardens the next day, I wanted to have her seen (and heard) before we left.

We went home with a prescription for amoxacillin for...     an ear infection. Doc didn't think the cough was anything to worry about.

So off we went on our wondrous spring break adventure to the land of many lands.

The first day, I attempted to put The Skink on some of the fun kiddie rides. No pictures. The kid was basically cursing me out the entire time for sticking her on a lame ride! So we asked her what ride she wanted to go on and she immediately pointed to the giant swirling swings of death. (Yeah - she takes after me like that.)

With more than a little trepidation, I stood in line with my tiny, 30 lb. kiddo and then helped her into one of the double swing seats so I could sit next to her and deal with any freak out she might engage in.

Her face lit up like a Christmas tree as the ride started, and she only became more excited as the swings went higher and faster. When the ride ended her face fell and she looked at me with big brown eyes and asked, "Again, please?"

So after what seemed like 27 rides on the swings, we finally talked her into trying something different.

The Battering Ram!

 
Can you see her? She's right in the center of the photo with Broadway's arm around her. Look at that smile!


Yup - that's my family!

Then on to the next fast ride...


I was a little worried because Broadway and the Hubbs were making the teacup spin like a cyclone. How did The Skink feel about it?




That's my girl!




After walking around the park for a while and taking in the many sights, the kids lobbied for a new pet.

I said, "No." 

The trip was fun, but The Skink's cough grew worse and worse, even though she was on antibiotics and getting two breathing treatments a day. So with no improvement to speak of, I took her to the doctor again last Wednesday after we were back in town.


Remember last year when The Skink was in the hospital for viral pneumonia... TWICE? Well...

I asked the doctor's office to put a "PulseOx" on The Skink to see what her oxygen sats were...

The doctor said he wouldn't call the ambulance if I promised to drive her straight to the hospital myself. (I cheated a little and swung by the house for some necessities like PJs, cows and my contact lens cleaner.)

After a brief stay in the ER, we were taken up to a room, and she has been there ever since. 

Sing with me now:
It's notfun to stay at the
Y...
M...
C......................................................... ........................ zzzzzzzzzzzzzzzzzzz 


On Thursday, a Patient Representative came to the room and asked The Skink what toys she would like to play with. Not wishing to bore the poor lady (or make her job too easy) The Skink got creative. She perked up and squealed, "A basketball!"

"You want a basketball in your hospital room?" the lady asked dubiously.
"Yup!"
"Do you like Barbie dolls?"
"Yeah, they're OK."
"Is there anything else you want?"
"YEAH! I want a BIG, BLACK... GORILLA!"
(Judging by the laughing, I don't think the Patient Representative was expecting that request.)
"Ummmmm... " (stifled laughter) "Uh... is there anything else I can get you?"
"Yeah!! I want a giant, brown bellybutton!"

(At which point everybody within ear-shot lost it completely... )

Much to our surprise, the Patient Representative reappeared in 5 minutes flat bearing a mini basketball, a Barbie doll and a BIG, BLACK... (plush) GORILLA!

I dunno... I was a little disappointed my kid didn't get her giant brown bellybutton... but then again, can you even imagine what my dryer's lint trap would look like if I ever had to wash the thing?

After 2 days in the same clothes, the Hubbs was kind enough to trade places with me on Friday night. I came home and promptly came down with what I  believe to be strep throat, meaning there is no way I can go back to the hospital and risk exposing other children in the ward. At least not until I have been on antibiotics for at least 24 hours... but my doctor isn't open until Monday!

This morning (Sunday, April 14th) they did another x-ray to see what progress was being made, and hopefully answer why The Skinks O2 sats were still lousy. Much to our dismay, her pneumonia has gotten worse!

How can it be worse? Why? My poor baby!


So - I'm stuck at home feeling lousy and unable to go see my sweet Skink who is in the hospital.

"Stressed?" you ask?

Yes -

...but thankfully I live on a beautiful farm and I have chickens. Broadway, Iraq and I laid in the warm grass today and we agreed that chickens make everything better... I mean not like a cure, but like... their antics and cuteness help take the edge off.

Yeah - I do know I'm nuts. Thanks for asking!






So in the morning I'll get my kiddos off to school, feed my landlord's horses and run off to the doctor to verify that my neck is not actually transforming into a tree stump, but is just inflamed due to a nasty Strep infection, get a prescription, drop off clean clothes for my Hubby and The Skink, buy chicken feed, run by the grocery store and try to be home in time for the other two kids to arrive home from school.

I'm sorry? What is this rest you speak of, and where is it to be found?

So if you have a moment, let me please ask a favor. If you pray, please send up a prayer for my sweet Skink. If you send healing thoughts, they are welcome and if you are a finger crosser, have fun typing 'cause I'm going to ask you keep your digits entwined until my baby is better.

Thank you in advance!

*

Monday, March 18, 2013

The Letter I Wrote To My Daughter's Principal



Dear Mrs. X et al,

What can one frazzled mom say aside from, “Yeah – she did it again?”

As far as we know, she got both the lotion and the ear buds from different students on the bus. She claims she can’t remember where she got the change, leaving us to wonder if she might have taken it from one of the “Men In Black” considering her apparent loss of recollection. (Or perhaps aliens took the change and planted it in our daughter’s sock drawer… we may never know!)

Although it has occurred to us that she may have been a packrat in her last life and simply suffers from flash-backs to her former rodent state, Iraq’s psychiatrist tells us that her kleptomania falls under the OCD behaviors… that fall under her diagnosis of Asperger’s. Of course to us it all feels like falling under a cement truck. The good news is that the American Psychiatric Association is removing the “Asperger’s” diagnosis from the new revision of the diagnostic manual, meaning our daughter will no longer have the condition.

(The bad news is that this just makes her diagnosis “Autism.”)
           
At any rate, we are currently returning afore-mentioned contraband to you. Feel free to punish our daughter as you see fit… (Does the school have a dungeon? She’s a little short for her age so perhaps “The Rack” would be a good choice – and far less intrusive than thumb screws when it comes to writing assignments.) If you decide to turn her in to the police, just tell them you found her as a wandering street urchin…  or a sea urchin… whatever. It will keep them guessing for long enough to give us all a few hours off.

Please accept our deepest apologies for our daughter’s behavior. She has been doing this since she was 2 years of age and has continued stealing regardless of being subjected to every form of punishment suggested by at least 10 mental health specialists as well as some disdained grocery store patrons (who invariably started their suggestion with, “If that were my kid I would…!” ). To date, nobody has suggested The Rack or thumb screws.
…I’ll be checking eBay.

Thank you for understanding… or for not understanding but continuing to provide a quality education for our daughter.

Sincerely,


Iraq’s Mother
Iraq's Mother

Tuesday, March 12, 2013

Gender Bias and an Autism Diagnosis in Girls

I wanted to share this very good article (complete with references and research to back up the claims) about the differences in the presentation in autism with girls. This is one of the reasons getting a proper diagnosis for a daughter is far more difficult that getting the same diagnosis for a son.

Thursday, February 28, 2013

Does Schizophrenia, Bipolar Disorder, Autism, Depression and ADHD Run In The Falily? You BET it Does!

And I can pretty much name a family member with one (or more) of those issues! 

A group of researchers has now found a common genetic link for each of these disorders related to calcium channels in the brain.

Read the entire fascinating New York Times article here:


Oh - and as a side note, the most "normal" appearing direct relative I have is my mother... who has issues with her calcium levels.

Go figure!

Sunday, January 13, 2013

So It's Been A While...

Yes - it has been a long while.

Iraq has been a tough kid to raise, but she has found a new love...

Horses!

She started riding in December. I am able to work at the barn part time and earn lessons for her... which suits me just fine!!

The Skink...   Still adorable! She was invited to sing a solo of "Jingle Bells" at the annual school board meeting, and reportedly was the star of the show. Her amazing teacher (who loves her to bits) got her the most adorable outfit - my kid looked like a princess!!


The chickens are growing up. Gunnar is getting to be a big boy - and very handsome too!






The Skink got a drum set for Christmas... which she loves!

Iraq got two fuzzy chickens (Silkies) for Christmas. They are much quieter than The Skink's gift and they lay eggs!

This one thinks it's a wookie, apparently...

Iraq's first time cantering. Don't let her expression fool you - the rest of the way around she was beaming!


And today the girls enjoyed a picnic... with guests.


Hungry guests...


Yes - farm life has made an extraordinary difference in our lives... and our choice of picnic guests! But we're loving every minute of it. We still have our challenges, but challenges just seem a little easier when you're surrounded by beauty... and chickens.







(If you happen to like chickens, please check out my other blog: Natural Chicken Keeping)

*