Thursday, May 19, 2011

Moving Daze and Issues of the Heart

So I mentioned briefly before that we were moving. Since mentioning it, time has moved in warp speed for us, and here we are in our new (much larger) rental house.



 I love that Broadway now has a real bed room instead of a converted dining room. I love that it has 2 full baths. I love the big, airy kitchen, but most of all, I LOVE our new PLAYROOM!



All the girl's toys are down in the playroom, and there is still plenty of room to run and do cartwheels! It's perfect for those days that are too cold, too hot or too wet. It even has a door and I'm considering installing a lock... on the outside of it... And for the days that aren't too hot or cold and happen to be just right (and we have a LOT of those here in Virginia), there is a lovely back yard.


It's a great place to hang out with friends.



Or give someone a nice back-scratch.

We kept our strawberry plants from last year (yes - they survived my "care"), and we have a number of berries ripening quite nicely.


The back yard also has mature pear trees! Of course I had to Google "Harvesting pears" because I know very little about growing this fruit, and I have learned that they should be picked before they are ripe - around mid-October in our area - and then put in cold storage for a couple weeks to ripen. Who knew? A-pear-antly if they ripen on the tree they get mushy on the inside. Ewww, right? Well - I suppose this means our refrigerator will be filled with pears this fall. (Avalanche!) Luckily, we all love pears!


If just 1/4 of those suckers make it until harvest, we'll be up to our ears in pears!





Iraq takes flight in the new yard.

As for me... well... I'd love to tell you that I'm just fine. I'm quite happy (see "new house"), but there are a few little things going on with me physically that we're still trying to pinpoint. Last year I had some issues with my heart and unfortunately I seem to be having some issues now. I had some pains in my neck, jaw and left arm the Friday evening before Mother's Day and did a "sleep-over" at the hospital while some tests were run. My iron was low (I seem to have chronic anemia - but I've known about that for a number of years... because it's chronic... ), low vitamin D and my potassium was very low which they believed may have caused some of the trouble. A bunch of other seemingly-unrelated problems were identified in the blood work too. I also have had chronic hypertension for the last 7 years which doesn't help. Now I'm going through a series of medical tests to see if there might be an underlying endocrine issue.

I am generally very careful with my diet and there is no reason that I should be low on any vitamins, minerals or other nutrients. At the request of my doctor I have been taking large doses of iron supplements already... and it's still low? Do I need to start swallowing horse shoes or something? And at what point do I need to worry if I'll start rusting in the shower?






So at this point in the game I'm just hoping they find *something* so I can treat it and move on! I have an entire medicine cabinet of pills I take for all my symptoms - it's no wonder I'm not hungry for breakfast right away - LOL. I figure if we can find the root cause, I can start treating that instead of taking a pill for each of the annoying symptoms. Wish me luck!


In the mean time, the girls are loving the new house. Iraq has had some transition issues - no surprise there. She has Aspergers. She has issues transferring from playtime to lunch time, let alone making a switch from one house to another. Needless to say, she's having some sleep problems and has "lifted" a few small objects belonging to other children at school. Yay... the kleptomania is back... *groan*  Hopefully once life settles down again, so will she. The ADHD meds are still making a BIG difference, but the Aspie behaviors are still present. Just easier to handle without the daily meltdowns and tantrums.

The Skink is as sweet and easygoing as ever. First night in the new house and she was asleep within 3 minutes of being put to bed. The one annoying thing she has been doing lately is screaming if she is angry or doesn't get what she wants. Gee... wonder where she could have learned that? As with Iraq, we don't give in to The Skink's screaming either. I think she just thinks it's the socially acceptable way to express one's distaste for something on our house *insert eye roll here*  We'll be working on that right alongside potty-training. (and a fun time was had by all)



Broadway is healthy and doing well. His grades have been up and down... his teachers say he gets distracted very easily. Well, duh! Funny thing about ADHD, huh? But we're working through that too :o)


That's all I got for now. Hope everyone in blogland is having a great day!



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Sunday, May 1, 2011

Campinig With Kids - Jellystone Park at Natural Bridge

On Thursday we packed up and left for Jellystone Park at Natural Bridge. We have been itching to try out our new-to-us pop-up camper, but we've had some reservations about camping with Iraq and The Skink. Dealing with Down syndrome and autism at home is one thing, but managing them at a campground... is another.

We had a BLAST!

Yup - all of us. We knew Broadway would love it, but Iraq was the one who ended up being the hardest to get into the car for the ride home. Sure, we had our hands full keeping up with The Skink, but then... we always have our hands full keeping up with her energy and fun-loving spirit.

We ended up having rather brisk weather this weekend. The air smelled like fresh, damp cedar mixed with undertones of smoke from the campfires. Iraq, The Skink, Brandy Ann and I went down to the playground while the guys set up our camper. It didn't take them long at all, and then we set about finding kindling.



You know? Food just tastes better when cooked over a campfire and eaten at a graying, wood picnic table under trees covered in new spring leaves!


After dinner we had some drinks and played some cards (and made stuff out of Play-Doh).


On Saturday we headed over to see the Natural Bridge. It's pretty amazing in person and quite beautiful. Walking up the path, one's ears are filled with the sound of rushing water. Small waterfalls trickle down the rock walls on either side. The roots of old trees wrap around the rocks. Midway up the path, a replica of a Native American settlement greets visitors with the sights and smells of yesteryear.


We took Brandy Ann along to help out with the kids. She earned her place, both helping me with The Skink while in the large gift shop, and soothing Iraq's rattled nerves when she became overstimulated from all the new sensory input along the path. (Yes - Iraq's medication is making a huge difference with her meltdowns, but she does still have major sensory issues. Her reaction to becoming overstimulated is just different now, and far easier for us to handle.) We even took Brandy into the cafe and she sat just as politely as you please as we ate our lunch. No begging, no wandering, nothing but exemplary behavior and only minimal drooling (hey - she could smell the food, and it smelled good!).
No - that's not drool. Brandy got to enjoy her own taste of nature along the path!

One of the best things about Jellystone Park was the number of other children there. Iraq found herself a large pack of children when ever she went to play or collect caterpillars (ewww).


We spent even more time around the campfire on Saturday evening, knowing the dawn of Sunday morning meant packing up to leave.



If you want to see more pictures from our adventure, please enjoy the slide show below!



We are already planning our next camping trip, and there is a high likelihood we will be returning to Jellystone park quite soon!



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Monday, April 25, 2011

No Small Miracle - BIG Behavioral Improvements

If you're one of my regular followers, you already know what a challenge we've been faced with in dealing with Iraq's issues. It has been an 8-year, uphill battle filled with endless tantrums, meltdowns, whining, crying and property damage. We have counted ourselves very lucky to get her into a public school that is wonderful about providing extra help and attention for her, and dealing with her kleptomania. We are lucky to have been able to move to a state (VA) that provides more assistance than TX did. We have been blessed to find a doctor who knows more about girls with Aspergers than most psychiatrists, and is willing to work hard to try to help us. Yet with all the great help, the days have been something akin to traversing Iraqi mine fields and the evenings have found us exhausted both mentally and physically... when there seems to be no end in sight, it can take a toll on a family.

Two weeks ago we had one of Iraq's monthly visits with her psychiatrist. On this visit the doctor asked (again) if we were interested in trying a medication like Abilify to see if it would help ease some of her symptoms. We have avoided this family of medications because it is known to have a number of serious and permanent side-effects like shrinkage of the white brain matter, twitches and tics that don't go away when the medication is discontinued, and weight gain.

Iraq is a skinny little thing, so the weight gain wasn't a big issue, but we feel she has enough issues without developing some lovely little twitches and tics to go along with her outrageous behavior. And brain matter shrinkage? I can't say I'm a big fan of that idea, honestly.

Yet in the throes of desperation, in the last few months I concocted my own theory. On that day I got up the nerve to bring it up with the doctor.

ADHD medication - namely Concerta. That's what Broadway is on. Why? (Hey - great question!) Well, my theory has been that if we can slow down Iraq's impulse control by just a beat, perhaps she can get a handle on her out-of-control behaviors including her kleptomania. It's a bit of a stretch, but I'm just crazy enough to come up with something like that and think it might work. I'm also desperate and unwilling to use my 7-year-old as a guinea-pig for a brain shrinkage and bodily twitching experiment.

Our fantastic doctor (after warning me at length that these types of stimulants can cause a plethora of other negative issues for children in the autism spectrum) agreed to let us try it. We started with good, old fashioned Ritalin. It's a short-acting medication so if we encountered any adverse side effects, it would wear off sooner. She was a bit skeptical, but said if it worked, she was willing to prescribe Concerta which is a timed release form of the same drug. One of Iraq's doctor's biggest concerns about trying this medication is that many children loose their appetites and loose weight - not a great thing when your child is skinny from having so many food-related dislikes.

So... On April 9th Iraq received her first dose of Ritalin.

I didn't hear angels singing or have a vision of any winged apparitions coming "unto" me, but a miracle still happened! Since Iraq started the medication (we have now progressed to the long-acting Concerta) we have had a total of 1 (one) meltdown, and it lasted 7 MINUTES! Suddenly my anxious, whiny, temperamental, Mount Vesuvius-like child is... well... so much more like a "typical" 7-year-old.

Only 2 weeks ago if we had asked Iraq to please go clean her room, the request would have been met with a whiny response that quickly morphed into a full-blown freak-out. Now, our beautiful little 7-year-old responds with a simple, "OK."

Who are you and what have you done with my daughter? On second thought, who the heck cares? Please stay a while!

It is not my intention to give anyone false hope. What works for one child may not work for another. The message I would like to share is that parents should follow their instincts. In many cases the answers are not obvious, but must be stumbled upon after years of misery after diligent effort and consideration.


Now - on a different subject, Easter was lovely! We went to Mimi and Pop's house where we enjoyed egg coloring, egg hunts, a boat ride and a delicious Easter dinner! Yum!

I have created a slide show of the photos so as not to make this post a million miles long.

See Slideshow here

For those of you who don't want to deal with the slide show, here are some highlights from the day:





The lake has become a nesting ground for Osprey.



My husband temporarily confiscated my camera. Note the "look of death" I'm giving him.


I hope everybody had a Happy Easter, and that you all see miracles in every day things!


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Sunday, April 17, 2011

A Cow in the Park - Moo!

 

First and foremost, I'm thrilled to announce that the Cutler Family from Texas will be adopting beautiful Josephine! You can see more about that HERE.



I couldn't be more happy for Josephine... or for the Cutler Family! Congratulations, Cutler Family!

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Today we went to our local park, and much to our great surprise and excitement, there was a baby bull there (rumor has it he'll become a steer next week). Needless to say, The Skink was thrilled beyond belief! She was so sweet and gentle with him.



Oh... and chickens.



And back to the cow...  (as cow crazy as The Skink is, is it any surprise she couldn't get enough of the sweet little guy - who technically wasn't a "cow," but why confuse the matter with bovine gender specifications?)





And then the cow had to go home, so we played at the park for a bit.










Can you see the dragon?




On a side note, we are trying the medication Concerta with Iraq. So far it has been a successful experiment! We've only had 1 (one) meltdown in a WHOLE WEEK! That's gotta be a record for her! We are also hoping the medication will slow her down an extra beat and allow her to overcome her kleptomania impulses. (Keep your fingers crossed that her fingers become less sticky!)

We have also found a new rental house and we'll be moving in a few weeks! More on the new house in a later post!





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Thursday, April 14, 2011

Josaphine Has A Family!

I don't have details yet, but I'm SO happy to announce that Josephine is now officially listed on the Reece's Rainbow "My Family Found Me" page!

I'm currently doing a Jim Carrey-style happy dance around my home office.

Thank  you to everyone who spread the word and donated to Josephine's adoption fund. I will give out more details as I learn them. Hoooorrrraaaaayyyyyy!



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