Monday, April 23, 2012

National Infertility Awareness Week - My Story


This year National Infertility Awareness Week runs from April 22 through April 28. Click HERE for more information.


The following is an excerpt from Disaster FlambĂ©  and my own account of dealing with infertility. It took 2+ years to conceive Broadway, and Iraq came after an even longer "dry spell." The Skink was an amazing little surprise, like punctuation at the end of my baby-making career.

 

An “F” In Conception

 

I’ve never understood the whole “Birds and Bees” thing. Perhaps I missed a story somewhere about some strange intra-species love affair, but if not, I fail to see the comparison of a bird or bee to anything having to do with human conception.

To my understanding, first a bird finds a partner, makes a nest, has a little fun and lays some eggs. After sitting on the eggs for a few weeks, mom and dad bird spend their time flying about looking for food. In a few months it’s time to fly south, and they all part ways to go on vacation. The following year, mom bird finds a nice new bird partner and the process starts over.

Bees on the other hand are a completely different story. There is but one queen. The queen does nothing but lies in the hive and pops out thousands of eggs. She has a husband or two, but all the rest of the bees are drones. For those who are not heavily into insect social structures, drones are mundane little workers with no other purpose than feeding and maintaining the hive. If you are born (or hatched) as a bee, there is very little chance you will have the luck to be a queen or one of her trysting partners. You will probably be a boring little drone, running about with pollen on your feet gossiping about the bees down in Honey Production not keeping up with demand.

Humans are different. Not to say some of them don’t find a new mate every year like birds, but it’s not the generally approved method for creating a family. And of course like the bee, some people are so focused on work they forget to have a family. But other than a few freak similarities, our mating habits are completely different.

Through our younger years we do what we can to prevent a family. We won’t even hug our own parents in public… we wouldn’t want anyone to think we actually liked those people! Then as young adults, we court, but try not to conceive or marry. If we are intelligent young adults, we utilize good birth control methods and leave nothing to chance. We eventually find the person we hope will be Mr. or Mrs. Right, settle down and wait until everything is perfect before conceiving.

Once we realize that nothing is ever perfect enough to have a child and that our biological clocks are ticking so loudly they’re keeping us up at night, we decide to stop preventing a family. For those that did not conceive by accident prior to this time, most will conceive within a few months of “not preventing.”

And then there are the rest of us - a small group who, after not preventing for a year or so, actually start trying. And trying. And trying. And when that doesn’t work, we seek medical attention. And thus begins the baby obsession.

The hardest part about belonging to the group of those “trying to conceive” or TTC, is that while we’ve finally made up our minds that we want a baby (bad!), all our friends seem to just pop them out like toast. In fact it frequently happens that a fertility-challenged woman will be surrounded by co-workers who get pregnant by accident, and complain about it incessantly. Fertility challenged women just love hearing about how pissed off a co-worker is about not being able to sit in the hot tub at a friend’s party last week! Love it.

Eventually we start to see the irony in the fact that we were so careful in preventing a family for so long before we were “ready.” We did the right thing, right? We were the smart ones, right? Oh, what we wouldn’t give to have the “luck” of those unsuspecting high-school girls who, whoops, get pregnant seemingly from just looking at someone of the opposite sex. How do they make it seem so easy? It is simply not fair!

And why does it always seem to be that the people who want babies the least seem to have the most? We have to watch the news with stories of little Joey and his 23 brothers and sisters being put in foster care when it is found that their 34-year-old mother has gone on vacation without them… for a year.

Perhaps from these experiences we become better parent material. We spend years wanting what we can’t seem to produce for ourselves, and dreaming about what we’d do if we had just one baby. When we’re lucky enough to have our own or adopt one, no-one in the world could make us treat that bundle of hopes and dreams in a less than wonderful way – ever! Our children will always know how much we wanted them and needed them.

Then, after experiencing the sheer joy of parenthood, we simply must have another. And the whole process starts over again. It doesn’t matter what they look like. It doesn’t matter if their skin is the same color or their eyes the same shape. What matters is that incredible bond between parent and child – that pure and overwhelming love that comes over us like an ocean wave.

I admit it. I value the lessons I’ve learned through the years I yearned to be a parent. Perhaps I don’t react so harshly when little shoes show up caked in mud. Perhaps I’ve made less silly rules than I would have had this gift from God come easily to me. In my house, “Don’t touch!” was replaced with “Let’s hold that together so you can see it better.” “No!” was replaced with “I’m worried you might get hurt if you do that. I want you safe because you are so important to me. Mommy would cry if you got hurt.”

I don’t know how birds handle infertility. Do they count their eggs before they’ve hatched? I don’t know if queen bees long for just one more larvae in the hive. Either way, we as humans are cursed with the knowledge of and longing for what we don’t have, and sometimes without the understanding of how much we’ve already got.

Such was the case for my husband and me. It had been almost two years since we had “stopped preventing.” It had been at least a year and a half since we started making charts, graphs and taking temperatures... sexy! On a number of occasions my husband had left work early, telling his commanding officer that his wife might be about to get pregnant, and he wanted to be there when it happened.

I had read all the books and knew enough to realize that I was somehow not quite “normal.” Instead of the neat little twenty-eight day cycle women were supposed to have, mine seemed to be all over the chart. Sometimes it was as short as thirty-four days and sometimes as long as fifty-six days. I knew I was supposed to ovulate fourteen days prior to having my period, but as these were the days before ovulation detection kits, I had no earthly clue when that might be on any given month.

As the months came and went, I almost always felt sure that “this was the month.” My breasts felt sore, I felt grumpy and tired and my period was late. After two years I finally had to understand that those symptoms were just the normal PMS symptoms I got, every stinking month! Like taking a bite of food in a restaurant will signal the wait staff to come ask you a question, for me taking a pregnancy test always brought on “Aunt Flo.”

In August of 1994 I was feeling particularly bad. I was considering getting my hopes up, but then made that regularly depressing discovery in the restroom. Of course I did what any other warm-blooded depressed, monetarily challenged woman would do. I went shopping. How else could I keep my mind off my failure? On the way home I stopped and picked up a home pregnancy test out of habit.

I realize that sounds totally and completely idiotic. It was, yet it was also a compulsion at this point in my TTC career. I cried as I took the test, just knowing I was about to get another “F” in conception. As with every other month, I immediately tossed the soggy stick into the garbage and then grabbed it out again and sat staring at it while the wetness slowly soaked it’s way up the material inside the plastic. I closed my eyes, prayed, cried and lost all hope. I opened my eyes and witnessed the most beautiful sight I had ever seen.

There were two perfectly clear lines created by my very own pee-pee on the test stick. Two of them! I cried even harder, prayed even harder and had two years of hope overcome my entire existence in that moment.

Throughout the rest of the day I planned how I would spring the big news to my husband for this was going to be one of the most important days of our lives. I didn’t have a pretty watch box and a gift would only raise his suspicions when I wasn’t supposed to be spending any money. I’d just have to hold it behind my back.

As he entered the house, I held both my hands behind my back and begged him to “pick a hand!”
“I’ve had a long day and I’m not up for games right now!” he said, pushing past me.
I positioned myself in front of him again and asked as sweetly as I could, “Please just pick a hand. Any hand!”
“You don’t even have dinner on yet?” he snapped at me. “I am hungry and tired and I am not up for games!”

I was so used to accepting this kind of treatment that it bounced right over my happy little head. I brought my arm around to my front and proffered the stick to him.
“What the hell is this?” he grumbled, taking the stick from my hand and then in horror he asked “Did you PEE on this?”
“I sure did!” I exclaimed proudly.
The slow realization of what he was holding finally worked its way up to the stony expression on his face.
“Oh my God! Oh my God!” he stammered.
I then received one of the nicest and happiest hugs from him in the history of our marriage.

Later on that evening on our way back from a dull army function, my husband stopped in at the local pharmacy.
“What are we doing here?” I wondered aloud.
“I’m getting two more tests to make sure you didn’t mess the first one up and get my hopes up for no reason.” He said as he closed the car door.
Both of those tests showed positive results too, much to his consternation and my glee.

Though all the tests showed I was pregnant, as I mentioned before, I had also gotten my period. The bleeding came and went, as did my concern over the tiny life nestled deep inside of me. The doctors were a bit befuddled and told me simply not to get my hopes up. Like hell! After over two years of wanting a child with all my heart, I wasn’t losing this one! I truly believed that nothing in the world could have brought me down from my wondrous cloud.

 







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Saturday, April 21, 2012

Moo Cow, Moo Cow, Cows! Cows! Cows!

Hey look! It's Emergency Cow!

 

So anybody familiar with my youngest, "The Skink," knows that she is a cow fanatic! The Easter Bunny brings most kids toy bunnies or chicks. He brings The Skink toy cows!


We have a herd of no fewer than 15 cows that reside in her room... many have the honor of lounging in her bed all day. She has her "school cow" and her "home cows." Cows go on trips with us and...

Do you remember this?


Our poor little Skink ended up in the hospital Pediatric ICU with viral pneumonia for over a week in November... and then again (in the regular pediatric ward) in January... and the cows were there to help us all through it.

During the initial November visit, we met the most wonderful ICU pediatrician who we will call "Dr. Cow." Having been raised on a dairy farm, Dr. Cow took a shine to The Skink, and The Skink to her! In fact, Dr. Cow has a young daughter who is a cow fanatic also - so when we ran into Dr. Cow and her small herd of daughters in the WalMart a few weeks ago, she told us about a Dairy Cow Show at Virginia Tech this weekend.


We may have been at a dairy farm in the VA Tech agricultural complex, but as far as The Skink was concerned, we were at some sort of bovid Disney World!


She was thrilled beyond words to see (and smell) real cows up close. They are so much less odoriferous in pictures! I was enjoying watching The Skink's enjoyment... but I was also turning a little green with the smell. I can handle horse smells. Cows do NOT smell like horses!



But The Skink didn't want to leave. At least not until she had personally said "Hi, cow!" to each and every cow there.




The Skink was negotiating with me to take this one home.

We finally dragged her away from all her new friends and headed home. We had a long conversation about our adventure which went a little like this:

Me: "Did you have fun?"
Skink: "YES!"
Me: "What did you see?"
Skink: "Cows! Black. White. Moo!"
Me: "Did you like seeing the cows?"
Skink: "Yes!"
Me: "Did the cows smell bad?"
Skink: "NO! Cows NOT smell bad! Cows good! Good cows!"

Apparently I really made her mad asking if the cows smelled bad! How dare I say such things about cows? What kind of mommy would suggest your favorite animal is stinky?

She has forgiven me now, and I can hear her and her big sister giggling over the monitor. My girls decided to have their first "Sleep Over" tonight.


The cows were invited!


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Sunday, April 15, 2012

Spring Break Travels - Special Needs Style!

 
Going on any vacation with kids is always an undertaking, but going on vacation with children with special needs can add a whole new level of excitement! I mean like getting-chased-by-a-rabid-bear excitement. And who doesn't need a little more excitement in their lives? (Or heart failure... ?)

Just over a year ago we took our saved-up money and purchased a really old previously enjoyed pop-up camper. On our budget, trips to Disney, Vale or *sigh* Europe are out of the question, so we decided that if we were ever to escape from the doldrums of  "Staycation" mode, camping trips were the way to go! It's pure awesomeness (if you like bugs and dirt... which I do).



This year Spring Break fell over both Easter and my Life Anniversary Day. (I'm way too cool to have "birthdays"... or admit that Father Time has been chasing me about like a lecherous old coot on a drinking binge) Hubby wanted to go to some nice hilly place with trees, but I wanted to go to the beach. Hubby doesn't like sand (a few tours in Kuwait will do that to a guy) so I gave him the puppy-dog eyes and he said "OK." I'm evil that way. I mean, what's a little PTSD between spouses, right?


So, we loaded up the Suburban with enough clothes and food to sustain a small African nation for a month and headed off to the PirateLand Campground in Myrtle Beach, South Carolina.

When arriving at a new campground, the second order of business is meeting your temporary neighbors. (The first order of business is running as fast as you possibly can with your legs crossed to the bathroom... but I think we all know that.)  First we met the people to our right. That's their grandson, 10-year-old Robert on the left.


Then we met the family directly behind us. That's their 10-year-old son Colton on the right. The Skink is in the middle. Yes... three beautiful kids with Down syndrome / Trisomy 21! Prior to this trip, none of us knew each other. What are the chances of something this cool happening on vacation? And with luck like this, why did I not win that huge lottery jackpot a couple weeks ago?

We played, colored Easter eggs and hung out with our new friends until it was time for Robert's grandparents to go play Bingo and Colton's family to go out for Krispy-Kreme doughnuts which I absolutely adore but will never have the pleasure of tasting again upon learning that gluten and I don't get along... at... all!





Leaving Easter egg colors for the fairies.

On Easter Sunday The Skink got to see the Atlantic Ocean for the first time... and feel just how cold it is in early April...



But everybody (with the exception of my poor hubby) was so excited, the cool temperatures didn't stop their fun.






While my children lounged about in their bathing suits, Murphy's Law dictated that I receive Mother Nature's "Gift" which I would have gladly given back. (Wouldn't have minded giving Mother Nature a big 'ol slap too, but didn't have the chance.) Don't I look right at home, fully-clothed on the beach? (Please note the fishing pole in the background which adds the comedic insinuation that I am getting very good reception out there! Beam me up, Scotty!)


After a couple of hours, Broadway announced that he was starving so I offered to make him a sandwich.

I don't think this was what he had in mind.

With temperatures in the '50's and low '60's over the next few days, visits to the beach were kept brief and were only done in jeans and warm jackets. But never fear! We did "other stuff" too...

...like playing with play-dough...




...Iraq having a meltdown due to "transition issues" associated with disrupting her regularly scheduled life... (not pictured)

...observing the local wildlife...






Squirrel Butt!



...Iraq having another meltdown...

...riding bikes...


...Iraq having another meltdown...
...coloring more Easter eggs...

With Sparkles!

...Iraq having another meltdown...
...coloring hair...

Don't you think the red brings her Devil  out nicely?

...Iraq having another meltdown...
...laughing at Mommy running on her goofy spring-shoes (hey - Tiggers bounce! What can I say?)...


...Iraq having another meltdown... 
...singing into hairbrush-microphones...

...Iraq having another meltdown...
...cuddling cows...


...Iraq having another meltdown...
...and making Magic!


I might add, this was The Skink's first time casting spells, and girlfriend had a BLAST!

Have I mentioned that Iraq had a few meltdowns? Any time her schedule is changed AT ALL, we can expect some (read: "a lot") of emotional issues. Many people in the autism spectrum go totally Chernobyl   dislike change... and Iraq is one of them. No matter how much fun we are having, she finds ways of fitting in a few mega-crying-freak-out binges along the way. My favorite this vacation was when we were in one of those touristy shops looking for some souvenirs. One moment Iraq was following me, and then next, she had disappeared into thin air. 


While most parents might have gone into panic someone-kidnapped-my-child mode, the Hubby and I calmly started searching through clothing racks. After about 8 minutes, Iraq was safely located cowering under a flock of parrot-print bathing suits. It took me a few minutes to extract her and convey my now-sobbing child out of the store, followed by the harsh stares of other shoppers (I love those looks. Don't you?).

If you've ever studied psychology (which I did, right up until I met the psychology professor from h311) you may have learned that the human brain will always try to find reason for emotion... even when there is none. In one study, which I found particularly interesting, electrical impulses were sent through the study participants' brains' to the parts of the brain associated with different emotions. When the participants experienced the triggered emotions, they were asked "why" they felt what they felt. Instead of answering "I don't know," each and every participant came up with an answer related to their personal life as to why they felt sad, angry, euphoric, etc.

I thought that was really interesting... and I also thought it would be pretty fun to have such an emotion-altering-electrode-contraption thing at my disposal... but I digress...

That study came to mind when I asked Iraq why she was having a mega-meltdown at the store and she quickly answered that it was because the new beach cover-up I had just purchased was hideous and she hated it. 

It's not that bad, is it?


Oh well... whatever - right? At any rate it finally got (almost) warm enough to venture back out to the beach on our last full day there - which was actually supposed to be our second-to-last-full-day there, but in light of the number of meltdowns we were dealing with on a daily basis, we decided that going home a day early wouldn't be a tragedy...

So this time we ALL put on bathing suits and went out to enjoy the sand, the waves and the goose-bumps one last time before traveling home.







Apparently the Teenage Handbook makes it clear that smiling for pictures is strictly prohibited for 17-year-old boys!








  In filling up her "pool" Iraq caught her first fish!






At the end of the day, Broadway took his magic carpet for a quick spin (wouldn't want him to fly it too long as he doesn't have his magic carpet flying license yet) and we all packed up and headed back to the camper.


On Saturday morning we packed up the camp site and headed home. Although Hubby and I will need a bit of R&R following such an exciting and eventful "vacation," at least the kids will be well rested! Yay.





Zzzzzzzzzzzzzzzzzzzzz...


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